Hi Everyone!
Happy New Year!!!
Two updates in one month....Wow. This one is hot off the press or right after the doctors office today and thought I would share right away.
I went to the doctor today and the news is the cancer is on the move, spreading to be exact. All the tests came back from the hospital stay last week and blood work and it appears, my cancer is getting more aggressive. Darn those cancer cells, but I am bigger and tougher and together with your love and support, I am going to stay strong and fight even harder.
We now have to be aggressive with the chemo again in order to keep it in check.
The name of the Chemo is Topotecan. My doctors wants everyone to know the effects and side effects of the drug. It will be much like the first round of chemo, tired, getting sick, losing all my hair, along with the possibilities of blood transfusions, as this drug will hit my blood count. We will try this for three months to see if it works.
Below are some of the side effects just for all of your awareness. It does not mean I will get all the side effects, my history does dictate some will be an issue. I want to try this one as this is the recommendation of my team of doctors and Don and I looked it over and are aware of the good and the bad.
No traveling for me for at least a month doctor's recommend, until we know how I will react. Especially after my allergic reaction last week.
I love each of you and wish all a Happy, Healthy, and Safe New Year!
This is the name of my next chemo drug. Looks like I am in for a ride...:)
TOPOTECAN
Side Effects:
Topotecan may cause very serious blood disorders (decreased bone marrow function leading to low number of blood cells such as white cells, red cells, and platelets). This effect can decrease your body's ability to fight an infection, cause your body to bruise or bleed easier, or cause anemia. Tell your doctor if you develop any of the following conditions: signs of an infection (such as fever, persistent sore throat), easy bruising/bleeding, unusual tiredness, fast/pounding heartbeat.
You will be closely monitored (e.g., with frequent blood tests) by your doctor while using this medication. Keep all medical and laboratory appointments.
Weakness, tiredness, headache, cough, nausea, vomiting, diarrhea, constipation, abdominal pain, loss of appetite, and mouth sores may occur. Nausea and vomiting can be severe. In some cases, your doctor may prescribe medication to prevent or relieve nausea and vomiting. Eating several small meals, not eating before treatment, or limiting activity may help lessen some of these effects. If these effects persist or worsen, tell your doctor or pharmacist promptly.
Temporary hair loss may occur. Normal hair growth should return after treatment has ended.
Remember that your doctor has prescribed this medication because he or she has judged that the benefit to you is greater than the risk of side effects. Many people using this medication do not have serious side effects.
Tell your doctor right away if you have any serious side effects, including: pain/redness/bruising at injection site, numbness/tingling of the arms/legs, yellowing eyes/skin, dark urine, lung problems (such as cough, shortness of breath).
A very serious allergic reaction to this drug is rare. However, get medical help right away if you notice any symptoms of a serious allergic reaction, including: rash, itching/swelling (especially of the face/tongue/throat), severe dizziness, trouble breathing.
This is not a complete list of possible side effects. If you notice other effects not listed above, contact your doctor or pharmacist.
I will keep in touch as I hope all of you do as well.
Sending Hugs,
Margie
Tuesday, December 27, 2011
Merry Christmas and Happy Holidays!
December 14, 2011
Hi Everyone
Merry Christmas and Happy, Healthy New Year! I hope you and your families have a wonderful celebration of our Saviors Birth.
Family news first; Don is busy taking care of me and consulting. However, the consulting has been slow, a little bit busier than last year.
Meghann and Dave are busy with Donny (5) and Maureen (3). Donny started kindergarten and Maureen pre-school. If you are on Facebook, Meghann shares the family stories, they are hilarious. They also went on their first vacation with the kids, and drove to Florida for 10 days. They all had a wonderful time.
Maureen and John are busy with Marina (10) and Lilly (7). Marina is in 5th grade and Lilly started 1st grade. Marina is in Orchestra and plays the Violin, I might be bias but I think Marina is fantastic at playing the Violin. Lilly played soccer this year. The name of her team was the Angry Birds. They played well for all 1st time players. Maureen was able to attend a conference this year for vegans. We are so proud of her traveling and taking her health and her family’s health seriously.
Michelle and Mike are busy with Maeve (6), Fiona (4) and Kellen (3). Maeve is in 1st grade and doing very well. Maeve was chosen to be part of the Christmas Mass this year. Maeve also took Irish dance last year and Ballet this year. Fiona is in pre-school and is also in ballet. Fiona loves to sing to the radio. Kellen is our fast moving typical boy. In Sept. Kellen fell and had 6 inside stitches and 4 outside stitches on his forehead. Last year he also fell and received stitches on his forehead. Kellen takes after his Uncle Sean with falling and getting stitches before he was 5.
Sean married the love of his life, Lisa. We are blessed with another great daughter-in-law. They bought a house one mile from our house. Sean is a City of Chicago plumber and is a foreman. Lisa recently changed jobs and works in the neighborhood as an Office Manager and Graphic Designer.
Jonathan and Jessica are busy with Adrianna (3). Jon came back from Afghanistan in April and was able to attend Sean and Lisa wedding. We were blessed to see Jessie and Adrianna too. Don and I are hoping to go to visit them at Ft Campbell, Tennessee in Jan.
Jon is a full time mechanic with the Army and Jessie is in nursing school. Adriana is in pre-school/day care and doing very well.
Don and I are very proud of our entire family!
The year flew by pretty fast. I have been going through a battery of tests and biopsy and hospital stays.
A quick review, July, you may remember the CT scan blood, work and MRI showed a mass on my stomach and esophagus, and had not penetrated the stomach wall, the cancer is covering the outside of the stomach and esophagus area. That was unexpected to hear at the time, however, I was not feeling the greatest and I found out why; the cancer was spreading.
I was hospitalized for a week in September and I had enough tests and probing, including a biopsy of my liver. The esophagus came back abnormal and the spleen enlarged and the liver enzymes were high. After plenty of IV’s and medication, things were under control.
Two weeks ago, Don and I had a meeting with the doctors and the decision was made to do further testing, CT scan, MRI, etc. gather all the results and make the decision on what is next.
.
I had a biopsy on my liver and bone marrow and the tests results came back normal; thank goodness. However, my lab results for my CA 125 on the rise and other numbers are not at the normal range, either too high or too low. All of this means, my body is beginning to reject the Taxol as a effective chemo drug. Taxol is now working against my good cells and helping the cancer cells. In January, I have another team meeting with the Doctor’s to decide on the next route of treatment.
To throw a monkey wrench in this week, I had an allergic reaction to the Taxol. I am extremely red all over’ like a sunburn. I have a very bad headache, I can only guess what people with migraines go through, and this one is terrible. I have a doctor’s appointment tomorrow. However, the doctor said today on the phone, the allergic reaction will have to take its normal course of healing. Healing can take a few days to a week to recover.
All in all, I am counting my Blessings and fighting strong against cancer, with the exception of a few hiccups along the way; nothing I can’t handle with the love and support of all of you. I love receiving e-mails and updates from friends and family. I am lucky to have wonderful friends that visit me at home. Many of you send me updates on your life and your family and I truly love reading each of the e-mails. It may take me awhile before I respond to e-mails, because I might be visiting and spending time with my family or friends or I may not be feeling well. Cancer has provided me with special time with family, my grandbabies and friends. If I did not have cancer, I would be working and not having the time I desire to spend with family and friends.
I have the most wonderful and exceptional husband and children with their spouses and the greatest grandchildren any wife, Mom and Nana could ask for. Each family member has a unique personality with a loving, humorous and supportive and extremely helpful spirit. I love each of you so very much.
Also, my brother, Larry; my sister-in-law, Donna; my sister, Carolyn; my sister JoAnne; and my Dad and his wife, Joan; each call me often, support and love me for who I am and pray for my healing every day. The Walsh Sisters, keep me laughing and love me unconditionally. I love you too!
In addition, I have a group of girlfriends from across the Country that come and visit me 3 to 4 times a year. We are forever friends and we have a blast when we are together. And, Ethel, my dearest friend for over 35 years, my life would not be the same without all of you. I love all of you more than I can express in words. Your love and support means the world to me.
I hope to have completed our Christmas cards by this weekend. For all those overseas, it is too late to mail a Christmas card, know we think of each of you often and remember our visits together.
It is my wish and prayers, each of you have a Blessed Christmas and safe, happy, healthy New Year.
I will try and be better with my updates and sending them more often, sorry this one took 6 months, I will make this my New Year’s resolution.
Love,
Margie
Hi Everyone
Merry Christmas and Happy, Healthy New Year! I hope you and your families have a wonderful celebration of our Saviors Birth.
Family news first; Don is busy taking care of me and consulting. However, the consulting has been slow, a little bit busier than last year.
Meghann and Dave are busy with Donny (5) and Maureen (3). Donny started kindergarten and Maureen pre-school. If you are on Facebook, Meghann shares the family stories, they are hilarious. They also went on their first vacation with the kids, and drove to Florida for 10 days. They all had a wonderful time.
Maureen and John are busy with Marina (10) and Lilly (7). Marina is in 5th grade and Lilly started 1st grade. Marina is in Orchestra and plays the Violin, I might be bias but I think Marina is fantastic at playing the Violin. Lilly played soccer this year. The name of her team was the Angry Birds. They played well for all 1st time players. Maureen was able to attend a conference this year for vegans. We are so proud of her traveling and taking her health and her family’s health seriously.
Michelle and Mike are busy with Maeve (6), Fiona (4) and Kellen (3). Maeve is in 1st grade and doing very well. Maeve was chosen to be part of the Christmas Mass this year. Maeve also took Irish dance last year and Ballet this year. Fiona is in pre-school and is also in ballet. Fiona loves to sing to the radio. Kellen is our fast moving typical boy. In Sept. Kellen fell and had 6 inside stitches and 4 outside stitches on his forehead. Last year he also fell and received stitches on his forehead. Kellen takes after his Uncle Sean with falling and getting stitches before he was 5.
Sean married the love of his life, Lisa. We are blessed with another great daughter-in-law. They bought a house one mile from our house. Sean is a City of Chicago plumber and is a foreman. Lisa recently changed jobs and works in the neighborhood as an Office Manager and Graphic Designer.
Jonathan and Jessica are busy with Adrianna (3). Jon came back from Afghanistan in April and was able to attend Sean and Lisa wedding. We were blessed to see Jessie and Adrianna too. Don and I are hoping to go to visit them at Ft Campbell, Tennessee in Jan.
Jon is a full time mechanic with the Army and Jessie is in nursing school. Adriana is in pre-school/day care and doing very well.
Don and I are very proud of our entire family!
The year flew by pretty fast. I have been going through a battery of tests and biopsy and hospital stays.
A quick review, July, you may remember the CT scan blood, work and MRI showed a mass on my stomach and esophagus, and had not penetrated the stomach wall, the cancer is covering the outside of the stomach and esophagus area. That was unexpected to hear at the time, however, I was not feeling the greatest and I found out why; the cancer was spreading.
I was hospitalized for a week in September and I had enough tests and probing, including a biopsy of my liver. The esophagus came back abnormal and the spleen enlarged and the liver enzymes were high. After plenty of IV’s and medication, things were under control.
Two weeks ago, Don and I had a meeting with the doctors and the decision was made to do further testing, CT scan, MRI, etc. gather all the results and make the decision on what is next.
.
I had a biopsy on my liver and bone marrow and the tests results came back normal; thank goodness. However, my lab results for my CA 125 on the rise and other numbers are not at the normal range, either too high or too low. All of this means, my body is beginning to reject the Taxol as a effective chemo drug. Taxol is now working against my good cells and helping the cancer cells. In January, I have another team meeting with the Doctor’s to decide on the next route of treatment.
To throw a monkey wrench in this week, I had an allergic reaction to the Taxol. I am extremely red all over’ like a sunburn. I have a very bad headache, I can only guess what people with migraines go through, and this one is terrible. I have a doctor’s appointment tomorrow. However, the doctor said today on the phone, the allergic reaction will have to take its normal course of healing. Healing can take a few days to a week to recover.
All in all, I am counting my Blessings and fighting strong against cancer, with the exception of a few hiccups along the way; nothing I can’t handle with the love and support of all of you. I love receiving e-mails and updates from friends and family. I am lucky to have wonderful friends that visit me at home. Many of you send me updates on your life and your family and I truly love reading each of the e-mails. It may take me awhile before I respond to e-mails, because I might be visiting and spending time with my family or friends or I may not be feeling well. Cancer has provided me with special time with family, my grandbabies and friends. If I did not have cancer, I would be working and not having the time I desire to spend with family and friends.
I have the most wonderful and exceptional husband and children with their spouses and the greatest grandchildren any wife, Mom and Nana could ask for. Each family member has a unique personality with a loving, humorous and supportive and extremely helpful spirit. I love each of you so very much.
Also, my brother, Larry; my sister-in-law, Donna; my sister, Carolyn; my sister JoAnne; and my Dad and his wife, Joan; each call me often, support and love me for who I am and pray for my healing every day. The Walsh Sisters, keep me laughing and love me unconditionally. I love you too!
In addition, I have a group of girlfriends from across the Country that come and visit me 3 to 4 times a year. We are forever friends and we have a blast when we are together. And, Ethel, my dearest friend for over 35 years, my life would not be the same without all of you. I love all of you more than I can express in words. Your love and support means the world to me.
I hope to have completed our Christmas cards by this weekend. For all those overseas, it is too late to mail a Christmas card, know we think of each of you often and remember our visits together.
It is my wish and prayers, each of you have a Blessed Christmas and safe, happy, healthy New Year.
I will try and be better with my updates and sending them more often, sorry this one took 6 months, I will make this my New Year’s resolution.
Love,
Margie
Wednesday, July 13, 2011
Summer Time
Hi Everyone
I hope everyone summer is going well.
My update is, I have to have a bone marrow bioscopy
on Tuesday morning and will be home Monday afternoon.
For three months, I have been struggling with platelets dropping from 90,000 to under 50,000. Not Good,
I am tired, bruise very easily and have bleeding issues
I have had increasingly difficulties withy walking and have a wheel chair as needed
Otherwise all is doing well. Sean and Lisa wedding was beautiful.
As soon as the pathology report came's back late next week I will let you know the outcome.
Take care for now and love each of you.
Margie
I hope everyone summer is going well.
My update is, I have to have a bone marrow bioscopy
on Tuesday morning and will be home Monday afternoon.
For three months, I have been struggling with platelets dropping from 90,000 to under 50,000. Not Good,
I am tired, bruise very easily and have bleeding issues
I have had increasingly difficulties withy walking and have a wheel chair as needed
Otherwise all is doing well. Sean and Lisa wedding was beautiful.
As soon as the pathology report came's back late next week I will let you know the outcome.
Take care for now and love each of you.
Margie
Saturday, April 23, 2011
Happy Easter
April 23, 2011
Hi Everyone
Time does fly when you are busy and having fun.
I have been asked to give an update since it has been almost 8 months from my last update. Hard to believe that time passes quickly.
First, my health issue, all winter long, I have been dealing with Herniated discs L4 and L5 and the narrowing of S1. What does all that translate to? Tests, MRI, CAT, EMG and others, seeing Orthopedic, Neurosurgeons and other doctors. It came down to I was badly needing back surgery as my right leg went numb. However, this would mean I would have to come off Chemo for 6 months and take the risk of the cancer going rapidly wild. My team, Don and I decided not that route. We are doing pain management and physical therapy at home. All seems slowly mending but not as fast as I would like it to go, I know patience is a virtue…I must have missed that class. Hahahahah
Currently, my body is beginning to reject the chemo, I have signs that my urine levels are high in protein and hemoglobin is dropping and my liver enzymes are rising (once again). I am being watched and the plan is to perhaps stop chemo for 30 days the clean my system and give it a rest, the down side is the cancer can rub wild and difficult to control. It is a wait and see process for now.
I have Home health care 4 days a week, which means, the nurse comes and takes vitals and starts an IV and then Don or I can start IV’s during the week and let them run 4 to 8 hours, depending. Don is trained to change my port if necessary and also provide me with IV fluids. I can do the IV fluids but I am not ready to change a port just yet. I use, press and seal to take showers or baths around the port and that seems to work very well.
Overall, I am feeling well, tired and fatigue are part of my day but not as bad as last year.
I wear a leg brace and use a cane to get around and do not drive very much anymore, as it has affected my right leg.
Second set of events, Jon comes home at 3:30am tonight from Afghanistan and will be in Chicago sometime mid May (13 or 14) for Sean and Lisa’s wedding. We can hardly wait to see him; he has been gone for over a year.
Third, the wedding plans are coming along very nice. I made the flower girl dresses for Fiona and Lilly. They turned out really cute and glad I was able to remember how to use a sewing machine after all these years,
The last fitting will take place on Easter Sunday and I think we are complete. We will have a house full of guests for the wedding, Jon, Jessie and Adrianna and our good friend Debbie from London is coming in all staying at our house. Others, like my Dad and other friends will be staying at the Oakbrook Marriott hotel.
Don and I are looking forward to spending some time with my Dad and Joan (step Mom) while they are here.
Instead of doing this years annual walk/run for Ovarian cancer. I instead reached out to many of you and asked to donate to a Chemo buddy of mine. In desperate need of clothing, groceries and gift cards for her family. Cancer patients do not receive assistance in this areas and we are expected to pay 20% of all medical costs. Chemo alone runs in the thousands of dollars. It is education people on these small facts.
A person (sibling) in my own family, last Dec bad mouthed me because this person said it was not true. The cost were not that high and of course Don and I made money to cover these outstanding costs.
It is terrible to be judge by others when they themselves have no idea what the costs are and what others are dealing with. The rest of my family, quickly came to my aid with open heart and listening. Something I will treasure my entire life.
Rebekah is going through something similar. I had her information checked and verified before I moved forward. Rebekah, and her family are so appreciative of the generosity of strangers. I was happy to pay it forward to another in need. It is the Christian thing to do; “do unto others as you would have done UN to you.”
God provides, it may take awhile and it may come from unexpected resources but he does provide. I am working on putting a book of resources together for cancer patients. My wish, is that the resource book helps those in need. Someday, people will stop judging others and start looking at ways to help one another instead of complaining about others out of pure jealousy.
That’s all from my soap box…hahahahaha I want to personally thank each of you who helped Rebekah, she is most gracious in your generosity and kind and supportive words.
Other than that cleaning and getting ready for this years garage sale in June is keeping me very busy.
Hope all is well with each of you, love and miss you.
Love,
Margie
Hi Everyone
Time does fly when you are busy and having fun.
I have been asked to give an update since it has been almost 8 months from my last update. Hard to believe that time passes quickly.
First, my health issue, all winter long, I have been dealing with Herniated discs L4 and L5 and the narrowing of S1. What does all that translate to? Tests, MRI, CAT, EMG and others, seeing Orthopedic, Neurosurgeons and other doctors. It came down to I was badly needing back surgery as my right leg went numb. However, this would mean I would have to come off Chemo for 6 months and take the risk of the cancer going rapidly wild. My team, Don and I decided not that route. We are doing pain management and physical therapy at home. All seems slowly mending but not as fast as I would like it to go, I know patience is a virtue…I must have missed that class. Hahahahah
Currently, my body is beginning to reject the chemo, I have signs that my urine levels are high in protein and hemoglobin is dropping and my liver enzymes are rising (once again). I am being watched and the plan is to perhaps stop chemo for 30 days the clean my system and give it a rest, the down side is the cancer can rub wild and difficult to control. It is a wait and see process for now.
I have Home health care 4 days a week, which means, the nurse comes and takes vitals and starts an IV and then Don or I can start IV’s during the week and let them run 4 to 8 hours, depending. Don is trained to change my port if necessary and also provide me with IV fluids. I can do the IV fluids but I am not ready to change a port just yet. I use, press and seal to take showers or baths around the port and that seems to work very well.
Overall, I am feeling well, tired and fatigue are part of my day but not as bad as last year.
I wear a leg brace and use a cane to get around and do not drive very much anymore, as it has affected my right leg.
Second set of events, Jon comes home at 3:30am tonight from Afghanistan and will be in Chicago sometime mid May (13 or 14) for Sean and Lisa’s wedding. We can hardly wait to see him; he has been gone for over a year.
Third, the wedding plans are coming along very nice. I made the flower girl dresses for Fiona and Lilly. They turned out really cute and glad I was able to remember how to use a sewing machine after all these years,
The last fitting will take place on Easter Sunday and I think we are complete. We will have a house full of guests for the wedding, Jon, Jessie and Adrianna and our good friend Debbie from London is coming in all staying at our house. Others, like my Dad and other friends will be staying at the Oakbrook Marriott hotel.
Don and I are looking forward to spending some time with my Dad and Joan (step Mom) while they are here.
Instead of doing this years annual walk/run for Ovarian cancer. I instead reached out to many of you and asked to donate to a Chemo buddy of mine. In desperate need of clothing, groceries and gift cards for her family. Cancer patients do not receive assistance in this areas and we are expected to pay 20% of all medical costs. Chemo alone runs in the thousands of dollars. It is education people on these small facts.
A person (sibling) in my own family, last Dec bad mouthed me because this person said it was not true. The cost were not that high and of course Don and I made money to cover these outstanding costs.
It is terrible to be judge by others when they themselves have no idea what the costs are and what others are dealing with. The rest of my family, quickly came to my aid with open heart and listening. Something I will treasure my entire life.
Rebekah is going through something similar. I had her information checked and verified before I moved forward. Rebekah, and her family are so appreciative of the generosity of strangers. I was happy to pay it forward to another in need. It is the Christian thing to do; “do unto others as you would have done UN to you.”
God provides, it may take awhile and it may come from unexpected resources but he does provide. I am working on putting a book of resources together for cancer patients. My wish, is that the resource book helps those in need. Someday, people will stop judging others and start looking at ways to help one another instead of complaining about others out of pure jealousy.
That’s all from my soap box…hahahahaha I want to personally thank each of you who helped Rebekah, she is most gracious in your generosity and kind and supportive words.
Other than that cleaning and getting ready for this years garage sale in June is keeping me very busy.
Hope all is well with each of you, love and miss you.
Love,
Margie
Thursday, May 20, 2010
May 2010
May 2010
Hi Everyone;
I had treatment today and doing well. As you may know from my last update, my CA 125 level jumped from 10 to 178; it has gone down to 39. YEAH! The Doxol (new Chemo) is working. The drop came faster than we expected but much wanted. This chemo is a bit different than the previous chemo. The side effects are swelling and burning and blisters on the hands and feet and mouth sores (blisters), much like canker sores. I have to have bags of peas placed on my hands and feet every day for an hour on a couple hours off to control the blisters. I have had blisters in my mouth, down my throat, my elbows and other unwanted areas. The blisters are uncomfortable and irritating. I have some medications and lotions to deal with the discomfort. Treatment with this chemo is every other week.
As many of you know the Ovarian Cancer walk was on May 1st and it was a huge success. Over 3,000 walkers came out in support. I had Team Margie and family and friends joined me in the walk. I did not walk but they all walked for me. I had two of my sister-in-laws keep me company on the park bench as we cheered on the walkers. I have attached a picture. In the picture you can see my hair is really dark and curly and growing back (I am holding the sign with my sun glasses on). It was a great time with everyone. I want to thank everyone for the support. You may have walked, donated, or sent kind words of support and love; I want to thank each of you for being there for me.
I also was fortunate to have had visitors this month also. My Dad has been living in Montana for 20 years and we had not spoken in more than 25 years. Too much to go into but he reached out to me this month and at the age of 88, traveled by train to Chicago to see me and reconcile. It was wonderful visit. I am thankful for his determination and reaching out to me. In addition, I had three of my dearest friends come to Chicago to visit me. We had a blast together and drove to see two more friends; we affectionately refer to each other as ‘sisters’. They look out after me and care for me and love me. It is wonderful to be cared about so much. This month brought so much outpouring of love; I am humbled by the support.
Everyone in the family is doing well. Jonathan is now in Afghanistan; he is there for the next year. Please keep him in your prayers. Sean bought a house near us. He is renting his condo and moved in with us until he closes in June. That’s all the news for now.
I hope all is going well with each of you and I will send another update next month.
Love,
Margie
Hi Everyone;
I had treatment today and doing well. As you may know from my last update, my CA 125 level jumped from 10 to 178; it has gone down to 39. YEAH! The Doxol (new Chemo) is working. The drop came faster than we expected but much wanted. This chemo is a bit different than the previous chemo. The side effects are swelling and burning and blisters on the hands and feet and mouth sores (blisters), much like canker sores. I have to have bags of peas placed on my hands and feet every day for an hour on a couple hours off to control the blisters. I have had blisters in my mouth, down my throat, my elbows and other unwanted areas. The blisters are uncomfortable and irritating. I have some medications and lotions to deal with the discomfort. Treatment with this chemo is every other week.
As many of you know the Ovarian Cancer walk was on May 1st and it was a huge success. Over 3,000 walkers came out in support. I had Team Margie and family and friends joined me in the walk. I did not walk but they all walked for me. I had two of my sister-in-laws keep me company on the park bench as we cheered on the walkers. I have attached a picture. In the picture you can see my hair is really dark and curly and growing back (I am holding the sign with my sun glasses on). It was a great time with everyone. I want to thank everyone for the support. You may have walked, donated, or sent kind words of support and love; I want to thank each of you for being there for me.
I also was fortunate to have had visitors this month also. My Dad has been living in Montana for 20 years and we had not spoken in more than 25 years. Too much to go into but he reached out to me this month and at the age of 88, traveled by train to Chicago to see me and reconcile. It was wonderful visit. I am thankful for his determination and reaching out to me. In addition, I had three of my dearest friends come to Chicago to visit me. We had a blast together and drove to see two more friends; we affectionately refer to each other as ‘sisters’. They look out after me and care for me and love me. It is wonderful to be cared about so much. This month brought so much outpouring of love; I am humbled by the support.
Everyone in the family is doing well. Jonathan is now in Afghanistan; he is there for the next year. Please keep him in your prayers. Sean bought a house near us. He is renting his condo and moved in with us until he closes in June. That’s all the news for now.
I hope all is going well with each of you and I will send another update next month.
Love,
Margie
Thursday, April 8, 2010
April 2010
Hi Everyone;
It has been a couple of months since my last update and people have e-mailed and wanted to know how I was doing. Thank you all for caring about me.
The cancer returned in January 2010. My CA 125 level jumped from 10 to 178. After several tests, it was clear, the cancer had returned. We had a meeting with my team that includes the Oncologist, GYN surgeon, nurses; the conclusion was to start me again on chemo therapy. This chemo is a bit different than the previous chemo. The side effects are swelling and burning and blisters on the hands and feet and mouth sores (blisters), much like canker sores. I have experienced the mouth sores so far and swelling. I have to have bags of peas placed on my hands and feet every day for an hour on a couple hours off to control the blisters. Because of the mouth sores, I lost 6 pounds in less than a month. The doctors placed me on’ ensure’ a protein drink to help with energy and make sure I have enough protein to heal the mouth sores.
One of my questions to the team was; when do we know the chemo working? Generally after the 4th treatment, tests will be performed and CA 125 level should go down. If not, other chemo treatments will be administered after the team meets and discusses the alternatives. I also asked, how long will I be on chemo? The answer is; for the rest of my life. Even if I go into remission again, I will need chemo for maintenance to keep the cancer under control. As you might remember from earlier updates, there is no cure for this cancer. Generally, when cancer returns, the cancer is more aggressive and becomes harder to treat. Cancer is sneaky and learns to adapt in many ways to the treatments. Right now, all is going as expected.
On the family side; Jonathan, Jessie and grand baby Adrianna were able to be here in Chicago with us for Easter. It was the first time in years that we were all together for Easter. Don took pictures of all 8 grandchildren, then a picture of all the kids, then with everyone. How awesome was that! Maureen had all of us at her house Easter morning for breakfast and an Easter egg hunt for all the little ones. I had a great time. Don cooked Easter dinner which was delicious. It was great to have all the kids together. Jonathan will be deploying to Afghanistan at the end of the month. Please remember him in your prayers for safe return.
I hope all is going well with each of you and I will send another update next month.
Love,
Margie
Hi Everyone;
It has been a couple of months since my last update and people have e-mailed and wanted to know how I was doing. Thank you all for caring about me.
The cancer returned in January 2010. My CA 125 level jumped from 10 to 178. After several tests, it was clear, the cancer had returned. We had a meeting with my team that includes the Oncologist, GYN surgeon, nurses; the conclusion was to start me again on chemo therapy. This chemo is a bit different than the previous chemo. The side effects are swelling and burning and blisters on the hands and feet and mouth sores (blisters), much like canker sores. I have experienced the mouth sores so far and swelling. I have to have bags of peas placed on my hands and feet every day for an hour on a couple hours off to control the blisters. Because of the mouth sores, I lost 6 pounds in less than a month. The doctors placed me on’ ensure’ a protein drink to help with energy and make sure I have enough protein to heal the mouth sores.
One of my questions to the team was; when do we know the chemo working? Generally after the 4th treatment, tests will be performed and CA 125 level should go down. If not, other chemo treatments will be administered after the team meets and discusses the alternatives. I also asked, how long will I be on chemo? The answer is; for the rest of my life. Even if I go into remission again, I will need chemo for maintenance to keep the cancer under control. As you might remember from earlier updates, there is no cure for this cancer. Generally, when cancer returns, the cancer is more aggressive and becomes harder to treat. Cancer is sneaky and learns to adapt in many ways to the treatments. Right now, all is going as expected.
On the family side; Jonathan, Jessie and grand baby Adrianna were able to be here in Chicago with us for Easter. It was the first time in years that we were all together for Easter. Don took pictures of all 8 grandchildren, then a picture of all the kids, then with everyone. How awesome was that! Maureen had all of us at her house Easter morning for breakfast and an Easter egg hunt for all the little ones. I had a great time. Don cooked Easter dinner which was delicious. It was great to have all the kids together. Jonathan will be deploying to Afghanistan at the end of the month. Please remember him in your prayers for safe return.
I hope all is going well with each of you and I will send another update next month.
Love,
Margie
Happy New Year
January 2010
Happy New Year!
Hi Everyone:
I hope you enjoyed the holidays with family and friends. I am only sending this update to the McDermott and Walsh families. I tried calling everyone on the McDermott side and left messages when they could not be reached. I don’t want to wait any longer with the information. It is imperative that the McDermott’s are well informed on the genetic gene process.
The New Year has brought more news. I was tested for BRCA 1 and 2. This is the gene testing to see if I carry the gene mutation for Breast/Ovarian/ stomach/ and a few of other possible cancers. When Don and I went to the Genetic counseling, we were well informed of the risk is for a positive result, as my family is loaded with different cancers. We were right, I came back positive for the mutation BRCA 2 the one that carries multiple mutations.
The BRCA 2 carries the highest risk for multiple cancers and this gene test is something each McDermott should consider having for their children’s sake.
The hard part for me was telling my children, Meghann, Maureen, Michelle and Sean, and Jonathan; however, Jonathan is adopted and not in our gene pool. What it means for me: the cancer I have is what the gene mutation said I would get. Therefore, not much the doctors can do except what we are doing, fighting it. I can stay in remission but more than likely not as long as I hoped and dreamed for but we know it is in God’s hands.
What it means for my children, decisions and choices; to get genetic testing or not. And many other decisions need to be made as well.
What it means to my siblings, greater chances they have the mutation as well.
All this explains why majority of the McDermott family does not live past the age of 60.
Please pray for everyone involved that they make the best decision for themselves and their families. This is an unbelievably difficult time for all of us. Thank you for your continued Love and support as we go into the New Year with more decisions and with the help of God he will lead us to the best paths to choose from.
I will be writing again next month to keep you updated.
Love, Margie
Happy New Year!
Hi Everyone:
I hope you enjoyed the holidays with family and friends. I am only sending this update to the McDermott and Walsh families. I tried calling everyone on the McDermott side and left messages when they could not be reached. I don’t want to wait any longer with the information. It is imperative that the McDermott’s are well informed on the genetic gene process.
The New Year has brought more news. I was tested for BRCA 1 and 2. This is the gene testing to see if I carry the gene mutation for Breast/Ovarian/ stomach/ and a few of other possible cancers. When Don and I went to the Genetic counseling, we were well informed of the risk is for a positive result, as my family is loaded with different cancers. We were right, I came back positive for the mutation BRCA 2 the one that carries multiple mutations.
The BRCA 2 carries the highest risk for multiple cancers and this gene test is something each McDermott should consider having for their children’s sake.
The hard part for me was telling my children, Meghann, Maureen, Michelle and Sean, and Jonathan; however, Jonathan is adopted and not in our gene pool. What it means for me: the cancer I have is what the gene mutation said I would get. Therefore, not much the doctors can do except what we are doing, fighting it. I can stay in remission but more than likely not as long as I hoped and dreamed for but we know it is in God’s hands.
What it means for my children, decisions and choices; to get genetic testing or not. And many other decisions need to be made as well.
What it means to my siblings, greater chances they have the mutation as well.
All this explains why majority of the McDermott family does not live past the age of 60.
Please pray for everyone involved that they make the best decision for themselves and their families. This is an unbelievably difficult time for all of us. Thank you for your continued Love and support as we go into the New Year with more decisions and with the help of God he will lead us to the best paths to choose from.
I will be writing again next month to keep you updated.
Love, Margie
Sunday, December 20, 2009
MERRY CHRISTMAS!
First, I am doing well. I had to have a surgical procedure on my back this week. All in all everything is going well. I have a CT scan and another round of major testing over the next couple of weeks, as I know the results, I will update in one e-mail and on the blog in January.
As we approach this holiest time of year, and reflect on the meaning of Jesus birth.
For me, it is the sometimes overlooked meaning to his life is he was a teacher. He was a teacher of life, a teacher of good, a teacher of love, to oneself and others, a teacher of many things.
Remember your teacher, Mother, Father, husband, wife, educator, friend, mentor, brother, sister, Aunt, Uncle, cousin, boss, co-workers, sons and daughters; whoever taught you your greatest gifts.
I would have to thank everyone above; especially this past year. The lessons learned of those who truly listen or did some of you pull words from my updates and chose to look at the negative instead of the positive message it was meant to bring or did you sit back and read my message and see the strength you provided me to endure and to reach out. In some respect we all saw both sides. It did for me, even as I wrote the words.
This past year brought out the best and worst in my Faith. One of the most profound differences in my life were the positive changes in relationships with Don’s sisters; my sisters-in-law that have become my ‘sisters’ (Monkey – no need to elaborate). My good buddies; the ‘Circle of Trust’ of women that I can relate to the sister hood with the Army contract we all shared. My best friend, Ethel, we became even closer, as if that were possible. And they are others that played a significant role of making my caps to wear, or making soaps, or taking Don and I to a movie to get away from reality. Others sent e-mails of support from far away or close by of support. Or perhaps a lunch meeting with a very good friend from whom I met in Graduate school and can’t help but think we are kindred spirits of sorts. Or perhaps, a phone call, cards, weekly envelopes, flowers, or PJ grams were sent, oh how I love those as well. Please know however you reached out to me, I shall never forget. Your love is truly remembered in my heart.
Other relationships changed to, some did not know what to do, not a visit, not even a call, not a note, not a…I know it was there way of dealing with what life was throwing at them and that is Okay.
My Faith challenged me to be upbeat on days I could not get up to be upbeat. And on those days, my love, my husband, Don, and my children, Meghann, Maureen, Michelle, Sean and Jonathan and my sons –in law and of course my grandchildren, were there to help me through it all. They were my Faith, when I needed it most, providing me with love, patience, compassion and support. Most of all, they were my teachers.
You don’t have to look far for Jesus gifts, it is right here in front of all of us.
With Love,
Margie
First, I am doing well. I had to have a surgical procedure on my back this week. All in all everything is going well. I have a CT scan and another round of major testing over the next couple of weeks, as I know the results, I will update in one e-mail and on the blog in January.
As we approach this holiest time of year, and reflect on the meaning of Jesus birth.
For me, it is the sometimes overlooked meaning to his life is he was a teacher. He was a teacher of life, a teacher of good, a teacher of love, to oneself and others, a teacher of many things.
Remember your teacher, Mother, Father, husband, wife, educator, friend, mentor, brother, sister, Aunt, Uncle, cousin, boss, co-workers, sons and daughters; whoever taught you your greatest gifts.
I would have to thank everyone above; especially this past year. The lessons learned of those who truly listen or did some of you pull words from my updates and chose to look at the negative instead of the positive message it was meant to bring or did you sit back and read my message and see the strength you provided me to endure and to reach out. In some respect we all saw both sides. It did for me, even as I wrote the words.
This past year brought out the best and worst in my Faith. One of the most profound differences in my life were the positive changes in relationships with Don’s sisters; my sisters-in-law that have become my ‘sisters’ (Monkey – no need to elaborate). My good buddies; the ‘Circle of Trust’ of women that I can relate to the sister hood with the Army contract we all shared. My best friend, Ethel, we became even closer, as if that were possible. And they are others that played a significant role of making my caps to wear, or making soaps, or taking Don and I to a movie to get away from reality. Others sent e-mails of support from far away or close by of support. Or perhaps a lunch meeting with a very good friend from whom I met in Graduate school and can’t help but think we are kindred spirits of sorts. Or perhaps, a phone call, cards, weekly envelopes, flowers, or PJ grams were sent, oh how I love those as well. Please know however you reached out to me, I shall never forget. Your love is truly remembered in my heart.
Other relationships changed to, some did not know what to do, not a visit, not even a call, not a note, not a…I know it was there way of dealing with what life was throwing at them and that is Okay.
My Faith challenged me to be upbeat on days I could not get up to be upbeat. And on those days, my love, my husband, Don, and my children, Meghann, Maureen, Michelle, Sean and Jonathan and my sons –in law and of course my grandchildren, were there to help me through it all. They were my Faith, when I needed it most, providing me with love, patience, compassion and support. Most of all, they were my teachers.
You don’t have to look far for Jesus gifts, it is right here in front of all of us.
With Love,
Margie
Wednesday, November 25, 2009
HAPPY THANKSGIVING!
To all my family and friends, Happy Thanksgiving!
This is a time to give thanks and reflect on the blessings bestowed upon us all.
I am truly blessed to have wonderful people in my life. This past year has changed my life; I like to think for the better. Although, cancer is hard to hear and know that it is terminal, cancer can be overwhelming at times, it also has brought out more love and support than I could have imagined.
Today, Wed the 25th of November, the day before Thanksgiving, I contemplate all that I am thankful for in my life. I am very thankful to the doctors and nurses and the treatment that is available for me. This treatment has provided me with remission. Awesome!
Remission can be for a long time and I pray every day for all those fighting the battle of cancer.
I am extremely thankful to my husband, Don, my children, Meghann, Maureen, Michelle, Sean and Jonathan; they are my inspiration, love, support, and all are cherished beyond words.
Today, at treatment, I learned my CA level increased by 1, it is at 10. This is the first increase in 3 months. Nothing to be alarmed about, something to watch. All other indicators are good and normal. Thankful...
I am Thankful for each of you in my life, and the outpouring of love, support, kindness, and friendship each of you have provided to me and our family this year. I love you all!
Wishing everyone a peaceful and thoughtful gathering with friends and family this Thanksgiving.
With love,
Margie
This is a time to give thanks and reflect on the blessings bestowed upon us all.
I am truly blessed to have wonderful people in my life. This past year has changed my life; I like to think for the better. Although, cancer is hard to hear and know that it is terminal, cancer can be overwhelming at times, it also has brought out more love and support than I could have imagined.
Today, Wed the 25th of November, the day before Thanksgiving, I contemplate all that I am thankful for in my life. I am very thankful to the doctors and nurses and the treatment that is available for me. This treatment has provided me with remission. Awesome!
Remission can be for a long time and I pray every day for all those fighting the battle of cancer.
I am extremely thankful to my husband, Don, my children, Meghann, Maureen, Michelle, Sean and Jonathan; they are my inspiration, love, support, and all are cherished beyond words.
Today, at treatment, I learned my CA level increased by 1, it is at 10. This is the first increase in 3 months. Nothing to be alarmed about, something to watch. All other indicators are good and normal. Thankful...
I am Thankful for each of you in my life, and the outpouring of love, support, kindness, and friendship each of you have provided to me and our family this year. I love you all!
Wishing everyone a peaceful and thoughtful gathering with friends and family this Thanksgiving.
With love,
Margie
Friday, October 16, 2009
REMISSION!
16 October 2009
Hi Everyone;
Six weeks since I last wrote and more test and lab work. Yesterday was a huge day for celebration; the news is good, I continue in Remission, 3 months and counting. YEAH!!! My CA 125 remains at 9. It is awesome I have remained at 9 without upward movement. Treatment is definitely working. I receive treatment approximately every 3 weeks through July 2010.
After my last writing, some were/are confused on what remission means for me. I will try and explain. Remission for me means the cancer is not active. I will always have cancer; PPC is not a curable cancer. However, the cancer can be dormant for an extended period of time; perhaps as long as 10 years. I/we are hopeful and prayerful for the long term. If anyone has questions, please ask me. I know Don and I are diligent about asking plenty of questions to the doctors and will be happy to share our knowledge.
On the crazy side of reality, things are getting back to some sense of normal. My hair is growing back faster than most that have gone through extensive chemo therapy. Although the hair is still very short, the color is dark with a few grey hairs and so far straight. I find the straight hair different than the curlier hair I used to have, the texture is softer. However, it is too short to call it straight for the long term. My eyebrows, wow…they are growing thicker and they came in like Brooke Shields. Hahahahaha. Too funny, I just had my eyebrows waxed and whew, it hurt like it did the very first time I had a wax. Ouch!
Last weekend, we (Don, Sean and I), drove to Ft. Campbell, Kentucky to see Jonathan, Jessie and Adrianna. Adrianna, our 8th grandchild, celebrated her 1st Birthday. Jessie parents and grandparents were also there. We had a blast and went on post and visited the museum, and PX (great shopping deals). Adrianna had her own birthday cake and destroyed the cake within seconds. Thank goodness my brother Larry and my sister-in-law Donna were there to save the day by bringing their camera along, because Nana and Papa forgot and had to purchase a disposable camera at the PX. All in all everyone had a good time and we all loved seeing everyone and enjoyed our visit. Jonathan will be deploying to Afghanistan within 6 months. I will keep all of you posted on when he deploys.
Don and I also participated in 2 yard sales and got rid of a lot of accumulated junk over the last 30 plus years. It feels good to go through and weed out the closets, garage, attic and basement. Don really worked hard along with Maureen to get things put together to sell and throw out. Next, the kids are coming over to go through some Christmas items I no longer use to put at their houses and out of mine. Ahh it feels good to have the house cleaned out and in order. Now, we just need to work on the office…it is like a black hole; things go in but never come out.
Enjoy Halloween with all the little trick or treaters.
That is the news for now.
Keep in touch and I will write again in November.
Love, Margie
Hi Everyone;
Six weeks since I last wrote and more test and lab work. Yesterday was a huge day for celebration; the news is good, I continue in Remission, 3 months and counting. YEAH!!! My CA 125 remains at 9. It is awesome I have remained at 9 without upward movement. Treatment is definitely working. I receive treatment approximately every 3 weeks through July 2010.
After my last writing, some were/are confused on what remission means for me. I will try and explain. Remission for me means the cancer is not active. I will always have cancer; PPC is not a curable cancer. However, the cancer can be dormant for an extended period of time; perhaps as long as 10 years. I/we are hopeful and prayerful for the long term. If anyone has questions, please ask me. I know Don and I are diligent about asking plenty of questions to the doctors and will be happy to share our knowledge.
On the crazy side of reality, things are getting back to some sense of normal. My hair is growing back faster than most that have gone through extensive chemo therapy. Although the hair is still very short, the color is dark with a few grey hairs and so far straight. I find the straight hair different than the curlier hair I used to have, the texture is softer. However, it is too short to call it straight for the long term. My eyebrows, wow…they are growing thicker and they came in like Brooke Shields. Hahahahaha. Too funny, I just had my eyebrows waxed and whew, it hurt like it did the very first time I had a wax. Ouch!
Last weekend, we (Don, Sean and I), drove to Ft. Campbell, Kentucky to see Jonathan, Jessie and Adrianna. Adrianna, our 8th grandchild, celebrated her 1st Birthday. Jessie parents and grandparents were also there. We had a blast and went on post and visited the museum, and PX (great shopping deals). Adrianna had her own birthday cake and destroyed the cake within seconds. Thank goodness my brother Larry and my sister-in-law Donna were there to save the day by bringing their camera along, because Nana and Papa forgot and had to purchase a disposable camera at the PX. All in all everyone had a good time and we all loved seeing everyone and enjoyed our visit. Jonathan will be deploying to Afghanistan within 6 months. I will keep all of you posted on when he deploys.
Don and I also participated in 2 yard sales and got rid of a lot of accumulated junk over the last 30 plus years. It feels good to go through and weed out the closets, garage, attic and basement. Don really worked hard along with Maureen to get things put together to sell and throw out. Next, the kids are coming over to go through some Christmas items I no longer use to put at their houses and out of mine. Ahh it feels good to have the house cleaned out and in order. Now, we just need to work on the office…it is like a black hole; things go in but never come out.
Enjoy Halloween with all the little trick or treaters.
That is the news for now.
Keep in touch and I will write again in November.
Love, Margie
Tuesday, September 1, 2009
1 Sept 2009
Hi Everyone;
How time flies when you are having fun! It is Sept. 1st already and hard to believe it was seven months ago when I was diagnosed with Primary Peritoneal/Ovarian Cancer (PPC) Stage III C. Although there is no current cure, remission can last a very long time. As I have reported previously, this is like living with any chronic disease like Diabetes, heart disease, etc. This will be a lifelong battle.
Last Wed. I had my first blood and Lab tests since remission was declared. I must say, it was a nagging few days in waiting for results of the CA 125. That is the cancer indicator. Normal is 35 or below…On Friday, the results came back as 9…YIPEEEEE still in remission. I will have to go through this every month for the next year and then every 3 months thereafter. Currently, I have treatments every 3 weeks for the next year of Avastin or Placebo; we (Doctors, Nurses and Don and I) strongly believe I am receiving Avastin the drug. The main side effect is high blood pressure and I have that as mine previously was always on the low side.
At the same time the lab test were being done last week, my back and sciatica (painful back pain that radiates down the leg). I had no idea what caused the trouble. I did not lift or do anything unusual, well, not that I can think of at the time. Don and I were a bit hesitant and nervous, thinking the cancer had spread. The Doctors sent me to get a spine x-ray on Friday and given some medication and steroids to manage the pain. Today we found the results out. Lumbar 1 and 2 have advance arthritis. To verify this further, I will be going to my regular physician in a couple of weeks and then to a MRI if necessary. My back is still very sore but manageable on the medication. This is a good indicator the pain management medication is working. If it was cancer, the pain would not decrease as much.
All in all health is good. J It is a bit nerve racking at times. On the funny side of things, my hair is growing back. This is faster than most; it usually takes 3 to 6 months. My grand kids love to touch my bald head. When my hair started growing back it feels very prickly. Maeve, 4 years old (Michelle oldest) and Fiona, 2 years old (Michelle 2nd) both were touching my head and Maeve said, “Nana hair feels like Daddy’s Beard”. We all had a good laugh because Maeve is right; my hair feels like a beard. Now it is getting softer. Not sure of the color or texture (curly or straight) just yet, it is too early to tell but I will let you know at my next update.
On the job situation, I have not heard back on the complaint I filed under the American with Disability Act (ADA) (cancer is a disability) with Equal Employment Opportunity Commission (EEOC). My previous employer had 40 days to respond. I contacted my EEOC assigned investigator today and left a message. I hope I hear something in September. When I do, I will write and let everyone know if EEOC thinks I have a case. We as many people we have spoken to believe we do have a case, let’s hope so.
Otherwise, August was a busy month as we had celebrated 5 of the 8 grand children’s Birthdays; 2 more birthday celebration will be next Sunday and then another in October. Whew this is where Nana and Papa can go broke…hahahahaha but we love it!
That is the news for now.
Keep in touch and I will write again in October or sooner.
Love, Margie
Hi Everyone;
How time flies when you are having fun! It is Sept. 1st already and hard to believe it was seven months ago when I was diagnosed with Primary Peritoneal/Ovarian Cancer (PPC) Stage III C. Although there is no current cure, remission can last a very long time. As I have reported previously, this is like living with any chronic disease like Diabetes, heart disease, etc. This will be a lifelong battle.
Last Wed. I had my first blood and Lab tests since remission was declared. I must say, it was a nagging few days in waiting for results of the CA 125. That is the cancer indicator. Normal is 35 or below…On Friday, the results came back as 9…YIPEEEEE still in remission. I will have to go through this every month for the next year and then every 3 months thereafter. Currently, I have treatments every 3 weeks for the next year of Avastin or Placebo; we (Doctors, Nurses and Don and I) strongly believe I am receiving Avastin the drug. The main side effect is high blood pressure and I have that as mine previously was always on the low side.
At the same time the lab test were being done last week, my back and sciatica (painful back pain that radiates down the leg). I had no idea what caused the trouble. I did not lift or do anything unusual, well, not that I can think of at the time. Don and I were a bit hesitant and nervous, thinking the cancer had spread. The Doctors sent me to get a spine x-ray on Friday and given some medication and steroids to manage the pain. Today we found the results out. Lumbar 1 and 2 have advance arthritis. To verify this further, I will be going to my regular physician in a couple of weeks and then to a MRI if necessary. My back is still very sore but manageable on the medication. This is a good indicator the pain management medication is working. If it was cancer, the pain would not decrease as much.
All in all health is good. J It is a bit nerve racking at times. On the funny side of things, my hair is growing back. This is faster than most; it usually takes 3 to 6 months. My grand kids love to touch my bald head. When my hair started growing back it feels very prickly. Maeve, 4 years old (Michelle oldest) and Fiona, 2 years old (Michelle 2nd) both were touching my head and Maeve said, “Nana hair feels like Daddy’s Beard”. We all had a good laugh because Maeve is right; my hair feels like a beard. Now it is getting softer. Not sure of the color or texture (curly or straight) just yet, it is too early to tell but I will let you know at my next update.
On the job situation, I have not heard back on the complaint I filed under the American with Disability Act (ADA) (cancer is a disability) with Equal Employment Opportunity Commission (EEOC). My previous employer had 40 days to respond. I contacted my EEOC assigned investigator today and left a message. I hope I hear something in September. When I do, I will write and let everyone know if EEOC thinks I have a case. We as many people we have spoken to believe we do have a case, let’s hope so.
Otherwise, August was a busy month as we had celebrated 5 of the 8 grand children’s Birthdays; 2 more birthday celebration will be next Sunday and then another in October. Whew this is where Nana and Papa can go broke…hahahahaha but we love it!
That is the news for now.
Keep in touch and I will write again in October or sooner.
Love, Margie
Saturday, August 29, 2009
Friday, July 24, 2009
Wednesday, July 15, 2009
15 July 2009
Hi Everyone;
Great news, “complete remission” is what the doctors told Don and I this morning. We are ecstatic with the news. What the future for me is this, one year of study drug Avastan or placebo every three weeks along with doctor’s appointments, weekly blood tests, blood pressure checks and temperature checks with my oncology nurse, and every three months a CT scan. Remission is no new tumor growth is evident and the CA 125 level remains below 35(mine is at 10). As you can see from the above my doctors will be keeping a close watch on me. I am truly blessed to have a wonderful oncology team.
My next treatment is Friday and should only be 1 ½ hours now instead of the 7 to 8 hours previously. My energy should begin to increase and hopefully return in full within 6 to 8 months along with my hair. My doctors gave me the go ahead to start light exercising by walking short distances and increase as my energy increases.
Don and I thank each of you for all your prayers and support. I always believed in the power of prayer and now I am proof prayer works. Keep the prayers going as remission is not a cure.
Keep in touch and I will write again in August. Love, Margie
Hi Everyone;
Great news, “complete remission” is what the doctors told Don and I this morning. We are ecstatic with the news. What the future for me is this, one year of study drug Avastan or placebo every three weeks along with doctor’s appointments, weekly blood tests, blood pressure checks and temperature checks with my oncology nurse, and every three months a CT scan. Remission is no new tumor growth is evident and the CA 125 level remains below 35(mine is at 10). As you can see from the above my doctors will be keeping a close watch on me. I am truly blessed to have a wonderful oncology team.
My next treatment is Friday and should only be 1 ½ hours now instead of the 7 to 8 hours previously. My energy should begin to increase and hopefully return in full within 6 to 8 months along with my hair. My doctors gave me the go ahead to start light exercising by walking short distances and increase as my energy increases.
Don and I thank each of you for all your prayers and support. I always believed in the power of prayer and now I am proof prayer works. Keep the prayers going as remission is not a cure.
Keep in touch and I will write again in August. Love, Margie
Thursday, May 28, 2009
Today is a good day for me. I am feeling well with minor fatigue issues.
By now, some of you are wondering why I did not send an e-mail on my update last week; I was in the hospital, again, for low white blood cell count and a fever of 101.9. Low white blood count is extremely dangerous for cancer patients; this can mean an infection and fast advancement of pneumonia. My hospitialization resulted in isolation and visitors to put gowns on and a mask and limited exposure to immediate family only.
I was released from the hospital late Thursday afternoon; only to go back Friday morning for CAT scan, lab and doctor appointments. I debated over the weekend to send an update but I thought best to send one after the results came in to share with each of you. The CAT scan is overall good, no advancement of the cancer; this means the chemo is working. However, two areas to be watched is my liver and right Kidney, both show cysts, non-cancerous. I asked extensive questions about the cyst and I was assured it is not cancer. My next CAT scan is at the end of June or beginning of July. My great news is my CA 125, the indicator f the ovarian cancer is down to 23 (Micha el Jordon formally of the Chicago Bulls number) normal is anything below 35!!! That number worked well for Michael Jordon and I can only assume it will work for me also. Translation, the chemo is working, kicking my butt at times and well worth the discomfort.
Tomorrow, I start the regiment of ‘Newlasta’ shots to promote white blood count. This stimulates the bone marrow to produce more white blood cells. The side effect is bone pain. I hope this works to keep me out of the hospital, more importantly to increase the white blood cell counts. Don will be able to give me the shot at home which is great so I do not have to go for additional visits to the doctor’s office for shots. Having cancer is a full time job!! I have a calendar book filled with appointments associated with cancer.
Don and I attended the ‘Ovarian Cancer Walk’ on May 2nd in Chicago. It was a great morning meeting other survivors of ovarian cancer. The pictures are of the survivors all wearing teal T-shirts. The walkers and runners wear white T-shirts. This is a positive event highlighting survivors and honoring the20women who have died of this disease.
Directly after the walk, Don and I went home and changed and attended Marina (oldest granddaughter) 1st communion celebration party. We had a great time and the restaurant was fantastic. We had the entire place dedicated to our party and the food at Al Primo Canto was outstanding. Thanks to Maureen outstanding organization skills the party was perfect! And I might add Marina looked gorgeous in all white!!!
On Sunday, May 3rd, I went to a very dear friend birthday celebration. It was a beautiful day and all of the party goers sat outside on the deck enjoying sunshine and great weather. I was honored to be part of the celebration.
On another note, I am going back to work tomorrow, Wed, May 13th, part-time for three hours a day for the month of May. I hope to try to get back to pre-cancer routine, slowly.
Keep in touch and I will write again next week providing an update and an overview.
By now, some of you are wondering why I did not send an e-mail on my update last week; I was in the hospital, again, for low white blood cell count and a fever of 101.9. Low white blood count is extremely dangerous for cancer patients; this can mean an infection and fast advancement of pneumonia. My hospitialization resulted in isolation and visitors to put gowns on and a mask and limited exposure to immediate family only.
I was released from the hospital late Thursday afternoon; only to go back Friday morning for CAT scan, lab and doctor appointments. I debated over the weekend to send an update but I thought best to send one after the results came in to share with each of you. The CAT scan is overall good, no advancement of the cancer; this means the chemo is working. However, two areas to be watched is my liver and right Kidney, both show cysts, non-cancerous. I asked extensive questions about the cyst and I was assured it is not cancer. My next CAT scan is at the end of June or beginning of July. My great news is my CA 125, the indicator f the ovarian cancer is down to 23 (Micha el Jordon formally of the Chicago Bulls number) normal is anything below 35!!! That number worked well for Michael Jordon and I can only assume it will work for me also. Translation, the chemo is working, kicking my butt at times and well worth the discomfort.
Tomorrow, I start the regiment of ‘Newlasta’ shots to promote white blood count. This stimulates the bone marrow to produce more white blood cells. The side effect is bone pain. I hope this works to keep me out of the hospital, more importantly to increase the white blood cell counts. Don will be able to give me the shot at home which is great so I do not have to go for additional visits to the doctor’s office for shots. Having cancer is a full time job!! I have a calendar book filled with appointments associated with cancer.
Don and I attended the ‘Ovarian Cancer Walk’ on May 2nd in Chicago. It was a great morning meeting other survivors of ovarian cancer. The pictures are of the survivors all wearing teal T-shirts. The walkers and runners wear white T-shirts. This is a positive event highlighting survivors and honoring the20women who have died of this disease.
Directly after the walk, Don and I went home and changed and attended Marina (oldest granddaughter) 1st communion celebration party. We had a great time and the restaurant was fantastic. We had the entire place dedicated to our party and the food at Al Primo Canto was outstanding. Thanks to Maureen outstanding organization skills the party was perfect! And I might add Marina looked gorgeous in all white!!!
On Sunday, May 3rd, I went to a very dear friend birthday celebration. It was a beautiful day and all of the party goers sat outside on the deck enjoying sunshine and great weather. I was honored to be part of the celebration.
On another note, I am going back to work tomorrow, Wed, May 13th, part-time for three hours a day for the month of May. I hope to try to get back to pre-cancer routine, slowly.
Keep in touch and I will write again next week providing an update and an overview.
Wednesday, April 8, 2009
Hi Everyone
Tough few days. Since last Friday it was a tough time, it is the same time period I was in the hospital last month, which are days 10, 11, 12, and 13 post chemotherapy. It took me by surprise, to be totally wiped out so fast for so long. Saturday was the toughest emotionally as well as physically. I had it with being sick and tired and Don was right there by my side to cheer me up and get off the pity pot. I am allowed one pity pot a month hehehehhee. I had no visitors over the weekend as it was just tough times of fatigue, nausea, severe pain. I wanted to visit with my brother Larry and my sister-in-law Donna on Sunday and my sister Mary on Monday but was just not in the cards. We will make it another time soon.
Don and the kids took such good care of me. My daughter, Maureen aka Moe, my tornado organizer, has organized my closets, my dressers and my shelves. Everything looks so good. She organized piles; yard sale, keep and toss. All this made a tremendous difference. My daughter Michelle and her husband Mike, make us dinner 2 to 3 times a week, especially on the tough weeks as my best friend and husband Don, spends endless hours by my side making sure I am ok. My daughter Meg, makes dinner on the other days and my son Sean, comes over for the heavy lifting or to watch a movie with me or shall I say while I sleep. My son Jonathan and I talk often or with Don as he is stationed at Fort Rucker, Alabama. I have the greatest family through helping me through these tough times.
One thing I can say about cancer is our family has become closer, as if I thought that was possible. We have always been a close knit family and since being diagnosed we have had great conversations on the future. I also tell my dreams of teaching in a University and what I would like to have done to the house and the entire family is committed to getting things done. My master bedroom is almost complete thanks to the kids and Don.
Great News from Last week!!!! I had a bone density scan and a mammogram and all went well and the results were age appropriate for the bone density; and mammogram came back benign. Whew… we are elated!!! I have a CAT scan sometime near the end of the month and that is the one to see if any cancer has progressed or regressed. Pray, cross all finger and toes all is well. I will keep you posted.
I am on the upswing now, my white blood count (WBC) is still low. Continued rest and WBC should bounce back soon.
I also heard from a few dear friends I worked with in previous years and they are coming to visit in June; I can hardly wait as we always have a great time together.
With much love,
Margie
Tough few days. Since last Friday it was a tough time, it is the same time period I was in the hospital last month, which are days 10, 11, 12, and 13 post chemotherapy. It took me by surprise, to be totally wiped out so fast for so long. Saturday was the toughest emotionally as well as physically. I had it with being sick and tired and Don was right there by my side to cheer me up and get off the pity pot. I am allowed one pity pot a month hehehehhee. I had no visitors over the weekend as it was just tough times of fatigue, nausea, severe pain. I wanted to visit with my brother Larry and my sister-in-law Donna on Sunday and my sister Mary on Monday but was just not in the cards. We will make it another time soon.
Don and the kids took such good care of me. My daughter, Maureen aka Moe, my tornado organizer, has organized my closets, my dressers and my shelves. Everything looks so good. She organized piles; yard sale, keep and toss. All this made a tremendous difference. My daughter Michelle and her husband Mike, make us dinner 2 to 3 times a week, especially on the tough weeks as my best friend and husband Don, spends endless hours by my side making sure I am ok. My daughter Meg, makes dinner on the other days and my son Sean, comes over for the heavy lifting or to watch a movie with me or shall I say while I sleep. My son Jonathan and I talk often or with Don as he is stationed at Fort Rucker, Alabama. I have the greatest family through helping me through these tough times.
One thing I can say about cancer is our family has become closer, as if I thought that was possible. We have always been a close knit family and since being diagnosed we have had great conversations on the future. I also tell my dreams of teaching in a University and what I would like to have done to the house and the entire family is committed to getting things done. My master bedroom is almost complete thanks to the kids and Don.
Great News from Last week!!!! I had a bone density scan and a mammogram and all went well and the results were age appropriate for the bone density; and mammogram came back benign. Whew… we are elated!!! I have a CAT scan sometime near the end of the month and that is the one to see if any cancer has progressed or regressed. Pray, cross all finger and toes all is well. I will keep you posted.
I am on the upswing now, my white blood count (WBC) is still low. Continued rest and WBC should bounce back soon.
I also heard from a few dear friends I worked with in previous years and they are coming to visit in June; I can hardly wait as we always have a great time together.
With much love,
Margie
Monday, March 30, 2009
Hi Everyone;
Here is last weeks update and a brief overview of what's to come this week. Last week, I received a visit for my friend Catherine from DePaul University and she brought two beautiful hats from the class, where I was teaching before I found out I had cancer. It warmed my heart and head, to know the love that went into choosing colors and designs and the perfect hats to fit my life style. I am so thankful for wonderful friends and colleagues in education.
I had Chemo on Tuesday and this time we started steroids in advance. This helped a little with the joint pain; it took the edge off but not all the way. I am losing feeling in my finger tips and toes and the bottom of my feet. It feels like they are going to sleep all the time. Makes it very difficult to type and walk. I spend a great deal of time taking 3 to 4 Epson salt baths to relieve the discomfort. Also, I slept 12 to 18 hours a day, extremely fatigued. However, today I feel more alert, thank goodness.
My hair is gone and its not so bad but I did have a hard time when it finally started coming out in clumps and I asked Don to shave it down (yep, back on the deck we went) Hilarious I am sure for the neighbors to view. One good thing, I don't have to shave my legs or my armpits, heheheheheh. Crazy I did not consider all the hair when the nurse said body hair too. What was I thinking...hehehehehe
On Saturday, March 28, we celebrated my grandson's Donny's (Meg and Dave little boy) 3rd Birthday, he had so much fun with family and friends. I could not stay long as fatigue set in and Don drove me home for a 4 hour nap. On Sunday, my neighbors had a pot luck dinner for me and it was so nice to see everyone and get out of the house for a couple of hours. I had to leave to take another nap. Linda and Kelly hosted this party despite our side of the street was without electricity for 9 hours. The creativity of the neighbors from BBQ in the snow (yes it snowed yesterday) to ordering out. My appreciation runs deeper than words can express to the kindness from everyone.
Tomorrow I have several tests to undergo; Mammogram and Bone density scan, blood work, etc. also, I am going to try and make class at DeVry University. It is the last class for incoming adjunct faculty to become certified with DeVry. I am truly excited as I am scheduled to teach classes this summer (if I get released from my doctors). I hope so.
I am also hoping to have lunch with a friend on Thursday and my brother and sister-in-law are visiting on Saturday. My sister Mary is visiting on Monday. I look forward to the visits.
Beginning this weekend begins the down cycle of white blood count, this time I/we will be extra-extra careful so I do not end up in the hospital again in isolation.
How are things with each of you? Take care my dear family and friends and know I think of you often. I truly appreciate you entertaining me with reading my blog,as it does help me therapeutic wise and provides a snapshot of my disease. And I love receiving comments as it provides me a glimpse into your life. So tell me what you are doing to keep busy these days?
With love,
Margie
Here is last weeks update and a brief overview of what's to come this week. Last week, I received a visit for my friend Catherine from DePaul University and she brought two beautiful hats from the class, where I was teaching before I found out I had cancer. It warmed my heart and head, to know the love that went into choosing colors and designs and the perfect hats to fit my life style. I am so thankful for wonderful friends and colleagues in education.
I had Chemo on Tuesday and this time we started steroids in advance. This helped a little with the joint pain; it took the edge off but not all the way. I am losing feeling in my finger tips and toes and the bottom of my feet. It feels like they are going to sleep all the time. Makes it very difficult to type and walk. I spend a great deal of time taking 3 to 4 Epson salt baths to relieve the discomfort. Also, I slept 12 to 18 hours a day, extremely fatigued. However, today I feel more alert, thank goodness.
My hair is gone and its not so bad but I did have a hard time when it finally started coming out in clumps and I asked Don to shave it down (yep, back on the deck we went) Hilarious I am sure for the neighbors to view. One good thing, I don't have to shave my legs or my armpits, heheheheheh. Crazy I did not consider all the hair when the nurse said body hair too. What was I thinking...hehehehehe
On Saturday, March 28, we celebrated my grandson's Donny's (Meg and Dave little boy) 3rd Birthday, he had so much fun with family and friends. I could not stay long as fatigue set in and Don drove me home for a 4 hour nap. On Sunday, my neighbors had a pot luck dinner for me and it was so nice to see everyone and get out of the house for a couple of hours. I had to leave to take another nap. Linda and Kelly hosted this party despite our side of the street was without electricity for 9 hours. The creativity of the neighbors from BBQ in the snow (yes it snowed yesterday) to ordering out. My appreciation runs deeper than words can express to the kindness from everyone.
Tomorrow I have several tests to undergo; Mammogram and Bone density scan, blood work, etc. also, I am going to try and make class at DeVry University. It is the last class for incoming adjunct faculty to become certified with DeVry. I am truly excited as I am scheduled to teach classes this summer (if I get released from my doctors). I hope so.
I am also hoping to have lunch with a friend on Thursday and my brother and sister-in-law are visiting on Saturday. My sister Mary is visiting on Monday. I look forward to the visits.
Beginning this weekend begins the down cycle of white blood count, this time I/we will be extra-extra careful so I do not end up in the hospital again in isolation.
How are things with each of you? Take care my dear family and friends and know I think of you often. I truly appreciate you entertaining me with reading my blog,as it does help me therapeutic wise and provides a snapshot of my disease. And I love receiving comments as it provides me a glimpse into your life. So tell me what you are doing to keep busy these days?
With love,
Margie
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